Sunday, April 24, 2011

New Post - 2 Years Post-Treatment

I've had several people email me lately asking how I'm doing now that 2 years have passed since my treatment. The positive results I initially received only lasted about 8 months after I returned from China then they simply disappeared. For the past year or so I have felt a decline in health and ability. I now use a scooter for walks longer than a block or so, and recently bought a conversion van to get around. Standing from a chair is getting very difficult. I had to stop PT given my lousy insurance and the cost. Exercise is now difficult but I do what I can.

Would I go again? No. It seems to me that the technology for stem cell treatment in FSHD is just not there yet. Maybe it will be in my lifetime, but not yet.

7 comments:

  1. I'm sorry to hear that Russ. It seems to have initial benefits, and we saw dramatic improvement in Sierra in the first 10 months or so. Unfortunately, she passed away in October.

    I hope they continue to perfect the technology so that it will be helpful long term.

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  2. Thanks for the follow up, never give up the fight. I'm sure they are working day and night to come up with some sort of treatment that is beneficial! Never give up, stay positive!

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  3. Hope you are doing better now. It is really hard to lead an easy life after treatment. My best wishes for you to get well soon.

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  4. Russ, I just watched your video and was so hopeful for you. I too have FSH MD and understand your desire to seek anything that might help. I'm getting ready to start a unique treatment/regime designed by Edgar Cayce. Who knows the outcome but like you I want to try anything I can. If I experience positive results, I will find a way to contact you.
    Linda

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  5. Linda,

    Thank you and good luck!

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  6. Once a team of Korean researchers that they had transplanted multipotent adult stem cells from umbilical cord blood to a patient suffering from a spinal cord injury and that following the procedure, she could walk on her own, without difficulty. The patient had not been able to stand up for roughly 19 years. For the unprecedented clinical test, the scientists isolated adult stem cells from umbilical cord blood and then injected them into the damaged part of the spinal cordStem Cell Treatments

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  7. Hey i saw your stuff its nice but i know one good and best health professionals for cp & adult stem cells from RSCI in an affordable price. We are using special type of therapy to repair tissues affected by disease, age or trauma. Learn more about stem cell by exploring our website repairstemcells.org.

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